Spinraza to be made available to all SMA patients in Croatia

Spinraza to be made available to all SMA patients in Croatia

Spinraza to be made available to all SMA patients in Croatia Izvor: Miranda Cikotic/PIXSELL (ilustracija)

Spinraza, a drug used to treat spinal muscular atrophy (SMA), has been approved for children on respirators and adult patients, the Steering Committee of the Croatian Health Insurance Agency (HZZO) said on Friday.

HZZO Director Lucijan Vukelic told a press conference that after today's decision which is based on the opinion of an expert commission for medicines, SMA will be prescribed for all patients for a period of six months after which patients will be tested again. If it is proved that the medication is not having any positive effect, that treatment will not be continued.

Health Minister Milan Kujundzic recalled that Croatia was among the first countries in Europe to start giving this drug in line with the rules of the profession which has also been done with this latest decision.

In Croatia There are currently 12 patients being treated with SMA and another 14 are using the drug as part of a clinical study. The exact number of potential patients that could be put on this therapy is not known, however, it is presumed that the total annual cost of Spinraza could be about HRK 150 million.

POVEZANE VIJESTI

Comments (0)

Comment sent successfully.

Comment sending failed.

Invalid CAPTCHA

* All fields are required

MOST POPULAR

NAJČITANIJE

READ MORE

NEWS

NEWS

Interior Ministry issues weather alert 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

EU Representative in Bosnia: Migrants' human rights must be respected 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

Reformists party to support SDP's Milanovic for President 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

Bosnian local official: We're not encouraging migrants to go to Croatia 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

Serbian President admitted to hospital 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

Hundreds of Bosnians gather to protest against migrants 15.11.2019.

15.11.2019.  |  NEWS

NEWS

NEWS

Trump associate Roger Stone found guilty of lying and witness tampering 15.11.2019.

15.11.2019.  |  NEWS

NEWS

NEWS

Eight members of HDZ Zagreb branch expelled over hate speech 15.11.2019.

15.11.2019.  |  NEWS

PROČITAJTE JOŠ

NEWS

NEWS

Interior Ministry issues weather alert 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

EU Representative in Bosnia: Migrants' human rights must be respected 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

Reformists party to support SDP's Milanovic for President 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

Bosnian local official: We're not encouraging migrants to go to Croatia 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

Serbian President admitted to hospital 16.11.2019.

16.11.2019.  |  NEWS

NEWS

NEWS

Hundreds of Bosnians gather to protest against migrants 15.11.2019.

15.11.2019.  |  NEWS

NEWS

NEWS

Trump associate Roger Stone found guilty of lying and witness tampering 15.11.2019.

15.11.2019.  |  NEWS

NEWS

NEWS

Eight members of HDZ Zagreb branch expelled over hate speech 15.11.2019.

15.11.2019.  |  NEWS

loader